Supporting Consumer Participation in Health and Medical Research : Future Directions for Australia

The Consumers Health Forum of Australia (CHF) is the national peak body representing the interests of Australian healthcare consumers. CHF works to achieve safe, quality, timely healthcare for all Australians, supported by accessible health information and systems. The purpose of this paper is to explore mechanisms to support consumer participation in health and medical research. This paper also provides a snapshot of the current literature, research and policy debate surrounding these issues. Our analysis draws on extensive work in this area, including consumer consultations and literature scoping undertaken by CHF throughout 2012. (APO 27/2/13)